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Welcome
Welcome to the site of people with CMTC (also 'Van Lohuizen syndrome') and other vascular malformations. CMTC stands for Cutis Marmorata Telangiectatica Congenita (CMTC).
CMTC has a wide range of possible complications therefore we offer our members the possibility to start and maintain a subgroup which allows usage of our facilities, (medical) contacts etc. An example is 'macrocephaly-CMTC' (M-CMTC). This complication is characterised by a large head and developmental delay.
We offer our members from all over the world a free medical examination in the Netherlands. We know ways in certain cases how to arrange two free airfare tickets. Sofar members from Aruba, Australia, Canada, Croatia, Denmark, England, Greece, Hong Kong, Italy, the Netherlands, Norway, Sweden and the USA have used this facility.
Welcome to the site of people with CMTC (also 'Van Lohuizen syndrome') and other vascular malformations. CMTC stands for Cutis Marmorata Telangiectatica Congenita (CMTC).
CMTC has a wide range of possible complications therefore we offer our members the possibility to start and maintain a subgroup which allows usage of our facilities, (medical) contacts etc. An example is 'macrocephaly-CMTC' (M-CMTC). This complication is characterised by a large head and developmental delay.
We offer our members from all over the world a free medical examination in the Netherlands. We know ways in certain cases how to arrange two free airfare tickets. Sofar members from Aruba, Australia, Canada, Croatia, Denmark, England, Greece, Hong Kong, Italy, the Netherlands, Norway, Sweden and the USA have used this facility.
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"Our activities are aimed at the well-being of people who suffer from vascular malformations like CMTC ('Van Lohuizen syndrome') and to stimulate the scientific research of these afflictions."
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Help CMTC-OVM
You can assist us in a variety of ways so we can continue supporting patients and their families. We do need this additional (financial) support so we can continue to hold the membership meetings (including free patient diagnosis) and organise patient days, amongst other activities.
There are several ways to help:
You can assist us in a variety of ways so we can continue supporting patients and their families. We do need this additional (financial) support so we can continue to hold the membership meetings (including free patient diagnosis) and organise patient days, amongst other activities.
There are several ways to help:
Member meeting USA 2010
On July 17, 2010 we held our membership meeting in Washington DC, attended by our USA and Canada members. There was also one member from ...
>> Read more
On July 17, 2010 we held our membership meeting in Washington DC, attended by our USA and Canada members. There was also one member from ...
>> Read more
Video impression of our activities
To give an impression of the many activities we are involved in. With special thanks to Mark Knopfler for giving permission to use his music!
>> Watch video
To give an impression of the many activities we are involved in. With special thanks to Mark Knopfler for giving permission to use his music!
>> Watch video
Recent activities
Member meeting NL 2010
On the 6th of november 2010 we held our yearly members meeting held in the Netherlands. The number of participants was a record for us: 98 people from 8 ...
>> Read more
On the 6th of november 2010 we held our yearly members meeting held in the Netherlands. The number of participants was a record for us: 98 people from 8 ...
>> Read more
Death notice
Ed Gallis, President CMTC-OVM US, died on the 22nd of March. Instead of flowers etc., he prefers donations for the children of CMTC-OVM US for whom he was the grandpa.
For further questions please contact president@cmtc.nl.
Ed Gallis, President CMTC-OVM US, died on the 22nd of March. Instead of flowers etc., he prefers donations for the children of CMTC-OVM US for whom he was the grandpa.
For further questions please contact president@cmtc.nl.
