• Mission
  • Activities
  • Member meeting NL
  • Family day
  • Children's website

CMTC OVM Mission

"Our activities are aimed at the well-being of people who suffer from vascular malformations like CMTC ('Van Lohuizen syndrome') and to stimulate the scientific research of these afflictions."

CMTC Efteling 20090613 007

CMTC activities

An example of the many activities which we are performing. With special thanks to Mark Knopfler (Dire Straits) for allowing the use of his music.

Member Meeting NL

Member meeting NL 2015

Our global member meeting was held on the 14th of November 2015 in the Netherlands.
A total of 126 people from 10 countries was present.

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Family day 2015 (Efteling)

On Saturday the 27th of June we organised the Dutch CMTC-OVM family day again! This year we had chosen the Efteling!
It was perfect in all aspects!

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Youth Education Rare Diseases

This is a special website for children in the age around 10-15 years. Here you can travel through a number of worlds together with Amy and Max!



Upcoming Events


0808:1111 03-11-2017 - 1111:1111 04-11-2017


0909:0505 10-05-2018 - 0505:0505 11-05-2018


CMTC-OVM RT @eurordis: New! Our infographic on social impact of raredisease, the focus of today's launch event ParliamentAdvocate4Rare https://t.…
About 16 hours ago
CMTC-OVM The number of participants for our global conference in the Netherlands has crossed the 100 border! Registration un… https://t.co/NaRmoLiioe
About 16 hours ago
CMTC-OVM Meeting Peter Saltonstall during the NORD conference in Washington DC again. https://t.co/wzvTg3QMSu
Tuesday, 17 October 2017 13:36