• Mission
  • Activities
  • Member meeting NL
  • Family day
  • Children's website

CMTC OVM Mission

"Our activities are aimed at the well-being of people who suffer from vascular malformations like CMTC ('Van Lohuizen syndrome') and to stimulate the scientific research of these afflictions."

CMTC Efteling 20090613 007

CMTC activities

An example of the many activities which we are performing. With special thanks to Mark Knopfler (Dire Straits) for allowing the use of his music.

Member Meeting NL

Member meeting NL 2015

Our global member meeting was held on the 14th of November 2015 in the Netherlands.
A total of 126 people from 10 countries was present.

Read more

Family day 2015 (Efteling)

On Saturday the 27th of June we organised the Dutch CMTC-OVM family day again! This year we had chosen the Efteling!
It was perfect in all aspects!

Read more


Youth Education Rare Diseases

This is a special website for children in the age around 10-15 years. Here you can travel through a number of worlds together with Amy and Max!



Upcoming Events


0909:1010 16-10-2017 - 0505:1010 17-10-2017


0808:1111 03-11-2017 - 1111:1111 04-11-2017


0909:0505 10-05-2018 - 0505:0505 11-05-2018


CMTC-OVM The inital program regarding our global conference and 20 years anniversary in the Netherlands are available:… https://t.co/fgd7P2PGjK
Tuesday, 15 August 2017 12:01
CMTC-OVM We published our information folder in even more languages! We are working on even more! Here's the link:… https://t.co/hyo9fzmGbD
Monday, 07 August 2017 10:45
CMTC-OVM tkmst17 CMTC-OVM is aanwezig tijdens GoPublic event in Utrecht.
Thursday, 03 August 2017 09:15