• Mission
  • Activities
  • Member meeting NL
  • Family day
  • Children's website

CMTC OVM Mission

"Our activities are aimed at the well-being of people who suffer from vascular malformations like CMTC ('Van Lohuizen syndrome') and to stimulate the scientific research of these afflictions."

CMTC Efteling 20090613 007

CMTC activities

An example of the many activities which we are performing. With special thanks to Mark Knopfler (Dire Straits) for allowing the use of his music.

Member Meeting NL

Member meeting NL 2015

Our global member meeting was held on the 14th of November 2015 in the Netherlands.
A total of 126 people from 10 countries was present.

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Family day 2015 (Efteling)

On Saturday the 27th of June we organised the Dutch CMTC-OVM family day again! This year we had chosen the Efteling!
It was perfect in all aspects!

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Youth Education Rare Diseases

This is a special website for children in the age around 10-15 years. Here you can travel through a number of worlds together with Amy and Max!



Upcoming Events


22-07-2017 0909:0707 - 0909:0707


0808:1111 03-11-2017 - 1111:1111 04-11-2017


CMTC-OVM Global Familyday in the Netherlands on 24th of June. A huge success! Approx. 80 people from 4 countries. https://t.co/zfR3ni6dB7
About 10 hours ago
CMTC-OVM We will be present during the Eurordis conference in Budapest (Hungary) on the 19th and 20th of May 2017. https://t.co/4MiU9j1F3A
Wednesday, 17 May 2017 07:01
CMTC-OVM Our annual report of 2016 has been published: https://t.co/XN4cB0GIhZ https://t.co/mkIala91yr
Friday, 28 April 2017 12:42