"Our activities are aimed at the well-being of people who suffer from vascular malformations like CMTC ('Van Lohuizen syndrome') and to stimulate the scientific research of these afflictions."
An example of the many activities which we are performing. With special thanks to Mark Knopfler (Dire Straits) for allowing the use of his music.
Our global member meeting was held on the 14th of November 2015 in the Netherlands.
A total of 126 people from 10 countries was present.
On Saturday the 27th of June we organised the Dutch CMTC-OVM family day again! This year we had chosen the Efteling!
It was perfect in all aspects!
Rare Disease Day is held on the last day of February every year to raise awareness of rare diseases. 28 February 2017 marked the tenth international Rare Disease Day. On and around this day hundreds of patient organisations from countries and regions all over the world held awareness-raising activities based on the theme of research. In the Netherlands a conference was organised in Nieuwegein and CMTC-OVM was present at this event.
Humberto Tan, a dutch television presenter, received an Angel Award.
Herewith our report: report
We're thrilled to announce a new partnership that will bring our resources in front of ‘The Mighty’ wide-reaching readership.
'The Mighty' is a story-based global health community focused on improving the lives of people facing disease, disorder, mental illness and disability. On the website of 'The Mighty' the personal stories of these people are published. One can find stories about people with for example diabetes, autism or hemangioma. The partnership with 'the Mighty' means that a CMTC-OVM homepage has been created within their website. We will now have a growing CMTC-OVM home page on 'The Mighty' and appear on many stories on the site.
Annual conference CMTC - Canada
19-05-2017 - 20-05-2017
EURORDIS Membership Meeting 2017 - Hungary
24-06-2017 0909:0606 - 1010:0606
Family Day NL
22-07-2017 0909:0707 - 0909:0707
CMTC-OVM US member meeting
0808:1111 03-11-2017 - 1111:1111 04-11-2017
Annual global conference CMTC-OVM - Netherlands
ING Bank Amsterdam
PO Box 1800
1000 BV Amsterdam
CMTC-OVM is a worldwide non-profit patiënt organisation founded in the Netherlands.