• Mission
  • Activities
  • Member meeting NL
  • Family day
  • Children's website

CMTC OVM Mission

"Our activities are aimed at the well-being of people who suffer from vascular malformations like CMTC ('Van Lohuizen syndrome') and to stimulate the scientific research of these afflictions."

CMTC Efteling 20090613 007

CMTC activities

An example of the many activities which we are performing. With special thanks to Mark Knopfler (Dire Straits) for allowing the use of his music.

Member Meeting NL

Member meeting NL 2015

Our global member meeting was held on the 14th of November 2015 in the Netherlands.
A total of 126 people from 10 countries was present.

Read more

Family day 2015 (Efteling)

On Saturday the 27th of June we organised the Dutch CMTC-OVM family day again! This year we had chosen the Efteling!
It was perfect in all aspects!

Read more


Youth Education Rare Diseases

This is a special website for children in the age around 10-15 years. Here you can travel through a number of worlds together with Amy and Max!



Upcoming Events


19-05-2017 - 20-05-2017


24-06-2017 0909:0606 - 1010:0606


22-07-2017 0909:0707 - 0909:0707


CMTC-OVM From 21-27 January 2017 the eHealth week was organised in the Netherlands. Lex van der Heijden presented twice:… https://t.co/pV9QOEI5bB
Thursday, 02 February 2017 07:54
CMTC-OVM On the 22nd of January 2017 the global CMTC-OVM Netherlands Organisation exists 20 years! We will celebrate this on… https://t.co/VSrLkjJWuE
Wednesday, 01 February 2017 18:54
CMTC-OVM The full report of our global meeting in November in the Netherlands is available (incl. video material):… https://t.co/eKbb4wCZ4p
Friday, 16 December 2016 13:46