• Mission
  • Activities
  • Member meeting NL
  • Family day
  • Children's website

CMTC OVM Mission

"Our activities are aimed at the well-being of people who suffer from vascular malformations like CMTC ('Van Lohuizen syndrome') and to stimulate the scientific research of these afflictions."

CMTC Efteling 20090613 007

CMTC activities

An example of the many activities which we are performing. With special thanks to Mark Knopfler (Dire Straits) for allowing the use of his music.

Member Meeting NL

Member meeting NL 2015

Our global member meeting was held on the 14th of November 2015 in the Netherlands.
A total of 126 people from 10 countries was present.

Read more

Family day 2015 (Efteling)

On Saturday the 27th of June we organised the Dutch CMTC-OVM family day again! This year we had chosen the Efteling!
It was perfect in all aspects!

Read more


Youth Education Rare Diseases

This is a special website for children in the age around 10-15 years. Here you can travel through a number of worlds together with Amy and Max!



Upcoming Events


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CMTC-OVM We are an active global organisation founded in 1997. On our website you can see some main activities for 2017:… https://t.co/Wqn09FKfHx
Tuesday, 18 July 2017 12:11
CMTC-OVM The report of our global Family Day on the 24th of June in the Netherlands has been published:… https://t.co/frciG4upqm
Tuesday, 04 July 2017 07:22
CMTC-OVM We are at the Novartis conference in Utrecht 'deciding together' (making decisions of patients and health care prof… https://t.co/EYX72dwuiC
Thursday, 29 June 2017 12:20