On Saturday, November 2, 2013 we organized our annual meeting in the Netherlands. Our foreign guests all meet on Friday, November 1, at 8:00 pm with a snack and drink to get acquainted. We started in 2011 with parallel sessions with different topics and this proved to be a hit. We applied the concept again this year and there were several parallel sessions held in both the morning and afternoon so as many people could attend as many of the different sessions as possible.
We also organized again this year a parallel session on personal experiences where patients and their parents could share their experiences. Dr. Wouter van der Schaar, medical psychologist, accompanied these sessions. There was a session especially designed for parents and a session for children.
In addition, there was again the opportunity to get a free medical examination by our medical advisors. These were held in a separate room so privacy was guaranteed. It may be advisable to make use of this annally so the patient can be followed.
Becky Gallis, president of CMTC-OVM U.S. was also present with the main objective to learn from our organization so that we work optimally together with the ultimate goal of our patients and to help their parents as well. As much as possible her granddaughter, Ellayna, will be present mainly because of the continuing medical care that she needs that is given by Becky who is her nurse.
We shares sessions via the Internet from the main hall with our members from around the world. We also video recorded certain sessions and will make them available on our website to members.
For all our members who came from abroad, we had a low price hotel that they could make arrangements to stay at so they could attend our meeting at the lowest possible cost. Again on Saturday evening we had organized a typical Dutch dinner for our foreign guests and volunteers.
For the children a separate room was available with all kinds of entertainment.
Hotel Leusden (van de Valk)
3833 LC Leusden
A double room with breakfast costed € 79 per night. A triple room with breakfast costed € 99 per night. At these prices there was still a tax.
Throughout the day one can register through our website on a separate computer. It is crucial that all members, donors, volunteers, etc. register because they then get automatic access to the information referred to their and our administration.
Please note that all sessions as much as possible are in both Dutch and English.
Provisional agenda Saturday, November 2nd
|09:30 to 10:00 hours||-||Reception and registration|
|10:00 to 10:30 hours||Lex van der Heijden||Business association|
|10:30 to 11:00 hours||Becky Gallis (Chairman CMTC-OVM U.S.)||CMTC-OVM U.S.|
|11:00 to 11:30 hours||-||Brainstorming|
|11:30 to 12:30 hours||Prof. Dr. Maurice van Steensel (parallel session 1)||Vascular malformations|
|11:30 to 12:30 hours||Dr. Wouter van der Schaar (parallel session 2)||Personal experiences (children)|
|11:30 to 12:30 hours||Lydia Handzova (parallel session 3)||CMTC-OVM and social media|
|12:30 to 14:00 hours||-||Lunch and mutually acquainted|
|14:00 to 15:00 hours||Dr. Wouter van der Schaar (parallel session 4)||Personal experiences (adults)|
|14:00 to 15:00 hours||Marco Dings (parallel session 5)||Website demonstration|
|14:00 to 15:00 hours||Lex van der Heijden (parallel session 6)||Kids website (ideas, etc.)|
|15:00 to 16:00 hours||Medical advisors, Becky, Lex||Explanation and demo SkinHouse and questions|
|16:00 to 17:00 hours||-||Refreshments|
|18:00 to 20:00 hours||-||Dinner with foreign guests, volunteers, and board|
Check in time or roadwork were planned for this weekend! It will not be the first time that participants will miss a (large) part of the meeting.