• Mission
  • Activities
  • Member meeting NL
  • Family day
  • Children's website
Mission

CMTC OVM Mission

"Our activities are aimed at the well-being of people who suffer from vascular malformations like CMTC ('Van Lohuizen syndrome') and to stimulate the scientific research of these afflictions."

CMTC Efteling 20090613 007

CMTC activities

An example of the many activities which we are performing. With special thanks to Mark Knopfler (Dire Straits) for allowing the use of his music.

Member Meeting NL

Member meeting NL 2015

Our global member meeting was held on the 14th of November 2015 in the Netherlands.
A total of 126 people from 10 countries was present.

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Family day 2015 (Efteling)

On Saturday the 27th of June we organised the Dutch CMTC-OVM family day again! This year we had chosen the Efteling!
It was perfect in all aspects!

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jezz

Youth Education Rare Diseases

This is a special website for children in the age around 10-15 years. Here you can travel through a number of worlds together with Amy and Max!

 

Register as member

jezz

Upcoming Events

No events found

Twitter

CMTC-OVM In collaboration with the European organization for rare diseases Eurordis, we are working on the CMTC patient jour… https://t.co/AAqCUx8UBM
About 14 hours ago
CMTC-OVM @egerrit @ehealthwkNL Hopelijk ook concrete oplossingen voor het snel stellen van een juiste diagnose bij zeldzame… https://t.co/ZwRIho7y5x
Sunday, 19 January 2020 21:50
CMTC-OVM One of our English members is Eden, a 15-year-old girl who is very serious about making films and even wins interna… https://t.co/HViM4GJaFV
Saturday, 18 January 2020 15:59