• Mission
  • Activities
  • Member meeting NL
  • Family day
  • Children's website

CMTC OVM Mission

"Our activities are aimed at the well-being of people who suffer from vascular malformations like CMTC ('Van Lohuizen syndrome') and to stimulate the scientific research of these afflictions."

CMTC Efteling 20090613 007

CMTC activities

An example of the many activities which we are performing. With special thanks to Mark Knopfler (Dire Straits) for allowing the use of his music.

Member Meeting NL

Member meeting NL 2015

Our global member meeting was held on the 14th of November 2015 in the Netherlands.
A total of 126 people from 10 countries was present.

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Family day 2015 (Efteling)

On Saturday the 27th of June we organised the Dutch CMTC-OVM family day again! This year we had chosen the Efteling!
It was perfect in all aspects!

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Youth Education Rare Diseases

This is a special website for children in the age around 10-15 years. Here you can travel through a number of worlds together with Amy and Max!



Upcoming Events


07-07-2018 0909:0707 - 1111:0707


21-07-2018 1010:0707 - 0404:0707


0808:1111 02-11-2018 - 1010:1111 03-11-2018


CMTC-OVM ECRDVienna @eurordis A very interesting session about appyling Artificialintelligence in the rare disease field! https://t.co/6Uag53jeWv
Saturday, 12 May 2018 14:36
CMTC-OVM ECRDvienna @eurordis Currently in the session Digital Strategy in Europe, breaking down the barriers. https://t.co/RXAbS1RhRl
Saturday, 12 May 2018 07:45
CMTC-OVM Ecrdvienna @eurordis We donate blood. We donate organs. Do we donate our medical and/or genetic data? Are you awa… https://t.co/ssNQtXgE6V
Friday, 11 May 2018 14:51