• Mission
  • Activities
  • Member meeting NL
  • Family day
  • Children's website

CMTC OVM Mission

"Our activities are aimed at the well-being of people who suffer from vascular malformations like CMTC ('Van Lohuizen syndrome') and to stimulate the scientific research of these afflictions."

CMTC Efteling 20090613 007

CMTC activities

An example of the many activities which we are performing. With special thanks to Mark Knopfler (Dire Straits) for allowing the use of his music.

Member Meeting NL

Member meeting NL 2015

Our global member meeting was held on the 14th of November 2015 in the Netherlands.
A total of 126 people from 10 countries was present.

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Family day 2015 (Efteling)

On Saturday the 27th of June we organised the Dutch CMTC-OVM family day again! This year we had chosen the Efteling!
It was perfect in all aspects!

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Youth Education Rare Diseases

This is a special website for children in the age around 10-15 years. Here you can travel through a number of worlds together with Amy and Max!



Upcoming Events


0909:0505 10-05-2018 - 0505:0505 11-05-2018


07-07-2018 0909:0707 - 1111:0707


21-07-2018 1010:0707 - 0404:0707


0808:1111 02-11-2018 - 1010:1111 03-11-2018


CMTC-OVM kickoffnell @LUMC_Leiden We are present during the National eHealth Living Lab kick-off in the Netherlands https://t.co/LfvlujlT92
Friday, 09 March 2018 08:25
CMTC-OVM NCZA2018 RareDiseaseDay This Dutch family has lost 2 children due to a very rare lung disease. A deeply touching… https://t.co/sCh9MUQrtP
Wednesday, 28 February 2018 18:43
CMTC-OVM NCZA2018 ZZD2018 We are present at the Dutch rare diseases day. The theme is diagnosis. https://t.co/kjuuGc74PY
Wednesday, 28 February 2018 13:26