• Mission
  • Activities
  • Member meeting NL
  • Family day
  • Children's website

CMTC OVM Mission

"Our activities are aimed at the well-being of people who suffer from vascular malformations like CMTC ('Van Lohuizen syndrome') and to stimulate the scientific research of these afflictions."

CMTC Efteling 20090613 007

CMTC activities

An example of the many activities which we are performing. With special thanks to Mark Knopfler (Dire Straits) for allowing the use of his music.

Member Meeting NL

Member meeting NL 2015

Our global member meeting was held on the 14th of November 2015 in the Netherlands.
A total of 126 people from 10 countries was present.

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Family day 2015 (Efteling)

On Saturday the 27th of June we organised the Dutch CMTC-OVM family day again! This year we had chosen the Efteling!
It was perfect in all aspects!

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Youth Education Rare Diseases

This is a special website for children in the age around 10-15 years. Here you can travel through a number of worlds together with Amy and Max!


Register as member


Upcoming Events


0808:1111 02-11-2018 - 1010:1111 03-11-2018


CMTC-OVM @TEDMED @LyndraInc Based on over 21 years of founding and running a global rare diseases foundation I'm wondering h… https://t.co/I3mZ8webyI
Saturday, 21 July 2018 00:12
CMTC-OVM @VBINY Angel's kiss is an other term.
Friday, 20 July 2018 17:36
CMTC-OVM @NIHDirector The need for proper diagnosis https://t.co/UaVjajkqxT
Saturday, 14 July 2018 05:05