• Mission
  • Activities
  • Member meeting NL
  • Family day
  • Children's website
Mission

CMTC OVM Mission

"Our activities are aimed at the well-being of people who suffer from vascular malformations like CMTC ('Van Lohuizen syndrome') and to stimulate the scientific research of these afflictions."

CMTC Efteling 20090613 007

CMTC activities

An example of the many activities which we are performing. With special thanks to Mark Knopfler (Dire Straits) for allowing the use of his music.

Member Meeting NL

Member meeting NL 2015

Our global member meeting was held on the 14th of November 2015 in the Netherlands.
A total of 126 people from 10 countries was present.

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Family day 2015 (Efteling)

On Saturday the 27th of June we organised the Dutch CMTC-OVM family day again! This year we had chosen the Efteling!
It was perfect in all aspects!

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Youth Education Rare Diseases

This is a special website for children in the age around 10-15 years. Here you can travel through a number of worlds together with Amy and Max!

 

Register as member

Which complications could be found in combination with CMTC?

To begin with, it should be noted that it is extremely difficult to determine whether any given complication is related to CMTC.

  1. Overgrown legs and arms (in length and girth).
  2. Undergrown legs and arms (in length and girth).
  3. Intellectual disability.
  4. Asymmetric development on one side of the body.
  5. Syndromal symptoms.

Up to which age could associated disorders appear?
Abnormalities could in fact manifest themselves at any age. For example in the case of glaucoma which can result in blindness when this condition is not diagnosed over an extended period of time.

 

jezz

Upcoming Events

Nov
1

0808:1111 01-11-2019 - 1010:1111 02-11-2019

Twitter

CMTC-OVM On the 19th of September we have participated in the PGOSUPPORT Academy in Utrecht with theme 'impact'. What are… https://t.co/O7q5SYo2h1
About 7 hours ago
CMTC-OVM @gatesfoundation We are wondering how much medical and psychological support patients with rare diseases and famili… https://t.co/5wBzzC6R43
About 8 hours ago
CMTC-OVM @wegohealth On our new website many personal stories are shared. After a survey it was confirmed that patients and… https://t.co/hgYtoJN51O
Tuesday, 17 September 2019 20:21