• Mission
  • Activities
  • Member meeting NL
  • Family day
  • Children's website
Mission

CMTC OVM Mission

"Our activities are aimed at the well-being of people who suffer from vascular malformations like CMTC ('Van Lohuizen syndrome') and to stimulate the scientific research of these afflictions."

CMTC Efteling 20090613 007

CMTC activities

An example of the many activities which we are performing. With special thanks to Mark Knopfler (Dire Straits) for allowing the use of his music.

Member Meeting NL

Member meeting NL 2015

Our global member meeting was held on the 14th of November 2015 in the Netherlands.
A total of 126 people from 10 countries was present.

Read more

Family day 2015 (Efteling)

On Saturday the 27th of June we organised the Dutch CMTC-OVM family day again! This year we had chosen the Efteling!
It was perfect in all aspects!

Read more

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Youth Education Rare Diseases

This is a special website for children in the age around 10-15 years. Here you can travel through a number of worlds together with Amy and Max!

 

Register as member

The Association respects the privacy of all its members/patrons and the users of its website and ensures that the personal information you provide will be treated as confidential.

The Association is not responsible for the privacy practices of other sites that are accessible via a link to this Web site. You can consult the privacy policies of those other sites by their privacy statements.

Processing of personal data by our Organization
If you log on as a member or supporter of our Association, we ask you for personal information. This information is stored in our administration and are used to provide our services to you and to inform you about our meetings and activities.

Your data may also be used to you through newsletters or otherwise with information about products and services of third parties which are the subject of our Association. Your email address will only be used if you give us permission. You can stop receiving this information always on the methodology specified in the mailings (opt-out).

Your personal data are in principle used only by the Association. We provide your information to third parties unless we are required to do so by law or court order, if you have consented to that disclosure or provision is necessary for the performance of a contract between you and our Association.

You always have the ability to change your personal data, or removed. You can do via This email address is being protected from spambots. You need JavaScript enabled to view it. to request the inspection procedure is laid down in an arrangement that you can find on our Web site and which is from This email address is being protected from spambots. You need JavaScript enabled to view it.

The Association shall retain your personal information longer than is necessary for the purposes for which they are absorbed and used in the administration. Your personal information will no later than one year after termination of your membership of the Association from the Administration be removed.

 

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Upcoming Events

Oct
18

1010:1010 18-10-2019 - 1111:1010 23-10-2019

Nov
1

0808:1111 01-11-2019 - 1010:1111 02-11-2019

Nov
9

0505:1111 09-11-2019 - 0505:1111 14-11-2019

Twitter

CMTC-OVM @raredisorders Fully agree! However, this is not only in Canada. This is at least the same average in Europe. We ne… https://t.co/HNBqFI7ro3
About 6 hours ago
CMTC-OVM We have arrived in Washington DC for the NORD conference. In case you want to have a meeting with us, please send… https://t.co/epIO1IM6Fz
About 8 hours ago
CMTC-OVM We provide personal support where we can such as last weekend near San Francisco. @RareDiseases @Eurordis… https://t.co/ASvD9HBNiK
Thursday, 17 October 2019 22:51