• Mission
  • Activities
  • Member meeting NL
  • Family day
  • Children's website

CMTC OVM Mission

"Our activities are aimed at the well-being of people who suffer from vascular malformations like CMTC ('Van Lohuizen syndrome') and to stimulate the scientific research of these afflictions."

CMTC Efteling 20090613 007

CMTC activities

An example of the many activities which we are performing. With special thanks to Mark Knopfler (Dire Straits) for allowing the use of his music.

Member Meeting NL

Member meeting NL 2015

Our global member meeting was held on the 14th of November 2015 in the Netherlands.
A total of 126 people from 10 countries was present.

Read more

Family day 2015 (Efteling)

On Saturday the 27th of June we organised the Dutch CMTC-OVM family day again! This year we had chosen the Efteling!
It was perfect in all aspects!

Read more


Youth Education Rare Diseases

This is a special website for children in the age around 10-15 years. Here you can travel through a number of worlds together with Amy and Max!


Register as member

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The Association is not responsible for the privacy practices of other sites that are accessible via a link to this Web site. You can consult the privacy policies of those other sites by their privacy statements.

Processing of personal data by our Organization
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The Association shall retain your personal information longer than is necessary for the purposes for which they are absorbed and used in the administration. Your personal information will no later than one year after termination of your membership of the Association from the Administration be removed.



Upcoming Events


1010:1010 18-10-2019 - 1111:1010 23-10-2019


0808:1111 01-11-2019 - 1010:1111 02-11-2019


0505:1111 09-11-2019 - 0505:1111 14-11-2019


CMTC-OVM @raredisorders Fully agree! However, this is not only in Canada. This is at least the same average in Europe. We ne… https://t.co/HNBqFI7ro3
About 6 hours ago
CMTC-OVM We have arrived in Washington DC for the NORD conference. In case you want to have a meeting with us, please send… https://t.co/epIO1IM6Fz
About 8 hours ago
CMTC-OVM We provide personal support where we can such as last weekend near San Francisco. @RareDiseases @Eurordis… https://t.co/ASvD9HBNiK
Thursday, 17 October 2019 22:51