• Mission
  • Activities
  • Member meeting NL
  • Family day
  • Children's website

CMTC OVM Mission

"Our activities are aimed at the well-being of people who suffer from vascular malformations like CMTC ('Van Lohuizen syndrome') and to stimulate the scientific research of these afflictions."

CMTC Efteling 20090613 007

CMTC activities

An example of the many activities which we are performing. With special thanks to Mark Knopfler (Dire Straits) for allowing the use of his music.

Member Meeting NL

Member meeting NL 2015

Our global member meeting was held on the 14th of November 2015 in the Netherlands.
A total of 126 people from 10 countries was present.

Read more

Family day 2015 (Efteling)

On Saturday the 27th of June we organised the Dutch CMTC-OVM family day again! This year we had chosen the Efteling!
It was perfect in all aspects!

Read more


Youth Education Rare Diseases

This is a special website for children in the age around 10-15 years. Here you can travel through a number of worlds together with Amy and Max!


Register as member

In case you are experiencing issues during the member registration please contact the treasurer by means of This email address is being protected from spambots. You need JavaScript enabled to view it.

This also applies in case of conference registration issues.

We apologize for the possible inconvience.

Thank you for your cooperation in advance.

The registration and the program for our annual worldwide conference in the Netherlands is available! Various members have already arranged their (air) travel.

We start Friday evening around 8 p.m. on November 1 and Saturday all day and evening including dinner.

More information

The registration for our global Familydag in the Efteling on Saturday the 6th of July is open! At this very moment we are expecting participants from at least 4 countries.

We start with the reception at 9 a.m., lunch is from 1 p.m. to 2 p.m. and the park closes at 11 p.m so in total 14 hours. The Efteling offers attractions for practically all ages!

The registration closes at the 29th of June.

The registration has been closed.

We are very busy developing a new website that works well on smartphones/tablets, with a lot of news and new functionality! 


Family messages

Fotolia 24437363 SBelow you will find obituaries of members of our organization. Their deaths need not be the result of CMTC, M-CM, etc., but in any event the cause of death is not indicated unless requested out of respect for the families.
This list may not be up to date, since we only place an obituary after being granted permission by the family.


Upcoming Events

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CMTC-OVM @egerrit @ehealthwkNL Hopelijk ook concrete oplossingen voor het snel stellen van een juiste diagnose bij zeldzame… https://t.co/ZwRIho7y5x
Sunday, 19 January 2020 21:50
CMTC-OVM One of our English members is Eden, a 15-year-old girl who is very serious about making films and even wins interna… https://t.co/HViM4GJaFV
Saturday, 18 January 2020 15:59
CMTC-OVM @jaapseidell Onbegrijpelijk ...
Saturday, 18 January 2020 15:53