• Mission
  • Activities
  • Member meeting NL
  • Family day
  • Children's website
Mission

CMTC OVM Mission

"Our activities are aimed at the well-being of people who suffer from vascular malformations like CMTC ('Van Lohuizen syndrome') and to stimulate the scientific research of these afflictions."

CMTC Efteling 20090613 007

CMTC activities

An example of the many activities which we are performing. With special thanks to Mark Knopfler (Dire Straits) for allowing the use of his music.

Member Meeting NL

Member meeting NL 2015

Our global member meeting was held on the 14th of November 2015 in the Netherlands.
A total of 126 people from 10 countries was present.

Read more

Family day 2015 (Efteling)

On Saturday the 27th of June we organised the Dutch CMTC-OVM family day again! This year we had chosen the Efteling!
It was perfect in all aspects!

Read more

jezz

Youth Education Rare Diseases

This is a special website for children in the age around 10-15 years. Here you can travel through a number of worlds together with Amy and Max!

 

Register as member

In case you are experiencing issues during the member registration please contact the treasurer by means of This email address is being protected from spambots. You need JavaScript enabled to view it.

This also applies in case of conference registration issues.

We apologize for the possible inconvience.

Thank you for your cooperation in advance.

The registration and the program for our annual worldwide conference in the Netherlands is available! Various members have already arranged their (air) travel.

We start Friday evening around 8 p.m. on November 1 and Saturday all day and evening including dinner.

More information

The registration for our global Familydag in the Efteling on Saturday the 6th of July is open! At this very moment we are expecting participants from at least 4 countries.

We start with the reception at 9 a.m., lunch is from 1 p.m. to 2 p.m. and the park closes at 11 p.m so in total 14 hours. The Efteling offers attractions for practically all ages!

The registration closes at the 29th of June.

The registration has been closed.

We are very busy developing a new website that works well on smartphones/tablets, with a lot of news and new functionality! 

On Saturday the 2nd of November 2019 we are organising again our global member conference in the Netherlands. On Friday evening we welcome our guests with a welcome drink and snack. 

Apart from a number of main sessions we also organise 9 parallel sessions (3 blocks of 3) and of course the option for a personal medical advice. 

We also intend to share the results of the CMTC genetic research program during our conference!

Read more: Global CMTC-OVM Member Conference Netherlands 2019

Subcategories

Family messages

Fotolia 24437363 SBelow you will find obituaries of members of our organization. Their deaths need not be the result of CMTC, M-CM, etc., but in any event the cause of death is not indicated unless requested out of respect for the families.
This list may not be up to date, since we only place an obituary after being granted permission by the family.

jezz

Upcoming Events

Oct
18

1010:1010 18-10-2019 - 1111:1010 23-10-2019

Nov
1

0808:1111 01-11-2019 - 1010:1111 02-11-2019

Nov
9

0505:1111 09-11-2019 - 0505:1111 14-11-2019

Twitter

CMTC-OVM RT @RareDiseases: Will Lewis (@Insmed) on patient involvement: “It's the passion, it's the north star, it's why we get out of bed every day…
About 3 hours ago
CMTC-OVM RT @julievraskin: “There is a science of luck. I am lucky to work on what I am most passionate about in the whole world! A cure for Angelma…
About 3 hours ago
CMTC-OVM RT @timturnham: Panel on affordability: 40% of money spent on drugs is lost to the supply chain. The money doesn’t go to drug companies, a…
About 5 hours ago