• Mission
  • Activities
  • Member meeting NL
  • Family day
  • Children's website

CMTC OVM Mission

"Our activities are aimed at the well-being of people who suffer from vascular malformations like CMTC ('Van Lohuizen syndrome') and to stimulate the scientific research of these afflictions."

CMTC Efteling 20090613 007

CMTC activities

An example of the many activities which we are performing. With special thanks to Mark Knopfler (Dire Straits) for allowing the use of his music.

Member Meeting NL

Member meeting NL 2015

Our global member meeting was held on the 14th of November 2015 in the Netherlands.
A total of 126 people from 10 countries was present.

Read more

Family day 2015 (Efteling)

On Saturday the 27th of June we organised the Dutch CMTC-OVM family day again! This year we had chosen the Efteling!
It was perfect in all aspects!

Read more


Youth Education Rare Diseases

This is a special website for children in the age around 10-15 years. Here you can travel through a number of worlds together with Amy and Max!


Register as member

The American Genetic Alliance organization exists 30 years in 2017. This was celebrated with a conference where we have taken part in Washington DC.

For more information: report



Upcoming Events

No events found


CMTC-OVM @NirohshahS We did participate.
Tuesday, 10 December 2019 20:28
CMTC-OVM On December 8 we helped organize and participated in World Light Day in the Netherlands. Every 2nd Sunday in Decemb… https://t.co/TS1xLAi5Tg
Monday, 09 December 2019 14:29
CMTC-OVM RT @inesernando: More than 800 HCPs have applied to join the ERNs. The final number will be known by the end of 2020. Geographic coverage…
Friday, 06 December 2019 19:00