• Mission
  • Activities
  • Member meeting NL
  • Family day
  • Children's website
Mission

CMTC OVM Mission

"Our activities are aimed at the well-being of people who suffer from vascular malformations like CMTC ('Van Lohuizen syndrome') and to stimulate the scientific research of these afflictions."

CMTC Efteling 20090613 007

CMTC activities

An example of the many activities which we are performing. With special thanks to Mark Knopfler (Dire Straits) for allowing the use of his music.

Member Meeting NL

Member meeting NL 2015

Our global member meeting was held on the 14th of November 2015 in the Netherlands.
A total of 126 people from 10 countries was present.

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Family day 2015 (Efteling)

On Saturday the 27th of June we organised the Dutch CMTC-OVM family day again! This year we had chosen the Efteling!
It was perfect in all aspects!

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jezz

Youth Education Rare Diseases

This is a special website for children in the age around 10-15 years. Here you can travel through a number of worlds together with Amy and Max!

 

Register as member

Cato van Lohuizen was the first doctor who has decribed in 1922 CMTC (also called 'Van Lohuizen syndrome'). We have contact with her family for years and thanks to these contacts, we have original photographs of her (even from the 19th century).
On one of the photos is Cato with her brother Theo (in the year 1899) and her doll. We have received her doll from her family on November 10, 2016.

We have her doll restored also we antique clothing. The result is amazing!

For more background information and pictures.

jezz

Upcoming Events

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Twitter

CMTC-OVM @NirohshahS We did participate.
Tuesday, 10 December 2019 20:28
CMTC-OVM On December 8 we helped organize and participated in World Light Day in the Netherlands. Every 2nd Sunday in Decemb… https://t.co/TS1xLAi5Tg
Monday, 09 December 2019 14:29
CMTC-OVM RT @inesernando: More than 800 HCPs have applied to join the ERNs. The final number will be known by the end of 2020. Geographic coverage…
Friday, 06 December 2019 19:00