• Mission
  • Activities
  • Member meeting NL
  • Family day
  • Children's website

CMTC OVM Mission

"Our activities are aimed at the well-being of people who suffer from vascular malformations like CMTC ('Van Lohuizen syndrome') and to stimulate the scientific research of these afflictions."

CMTC Efteling 20090613 007

CMTC activities

An example of the many activities which we are performing. With special thanks to Mark Knopfler (Dire Straits) for allowing the use of his music.

Member Meeting NL

Member meeting NL 2015

Our global member meeting was held on the 14th of November 2015 in the Netherlands.
A total of 126 people from 10 countries was present.

Read more

Family day 2015 (Efteling)

On Saturday the 27th of June we organised the Dutch CMTC-OVM family day again! This year we had chosen the Efteling!
It was perfect in all aspects!

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Youth Education Rare Diseases

This is a special website for children in the age around 10-15 years. Here you can travel through a number of worlds together with Amy and Max!


Register as member

Cato van Lohuizen was the first doctor who has decribed in 1922 CMTC (also called 'Van Lohuizen syndrome'). We have contact with her family for years and thanks to these contacts, we have original photographs of her (even from the 19th century).
On one of the photos is Cato with her brother Theo (in the year 1899) and her doll. We have received her doll from her family on November 10, 2016.

We have her doll restored also we antique clothing. The result is amazing!

For more background information and pictures.


Upcoming Events


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CMTC-OVM Today we have met two families in Bratislava (Slovakia) for personal support. Answering lots of questions and con… https://t.co/eEVOR7ZGAu
About 3 hours ago
CMTC-OVM @cmutena Currently in Bratislava https://t.co/3GDBCKbYZr
About 8 hours ago
CMTC-OVM @SociaalWerkNL Succes Véronique!
About 15 hours ago