• Mission
  • Activities
  • Member meeting NL
  • Family day
  • Children's website
Mission

CMTC OVM Mission

"Our activities are aimed at the well-being of people who suffer from vascular malformations like CMTC ('Van Lohuizen syndrome') and to stimulate the scientific research of these afflictions."

CMTC Efteling 20090613 007

CMTC activities

An example of the many activities which we are performing. With special thanks to Mark Knopfler (Dire Straits) for allowing the use of his music.

Member Meeting NL

Member meeting NL 2015

Our global member meeting was held on the 14th of November 2015 in the Netherlands.
A total of 126 people from 10 countries was present.

Read more

Family day 2015 (Efteling)

On Saturday the 27th of June we organised the Dutch CMTC-OVM family day again! This year we had chosen the Efteling!
It was perfect in all aspects!

Read more

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Youth Education Rare Diseases

This is a special website for children in the age around 10-15 years. Here you can travel through a number of worlds together with Amy and Max!

 

Registration for our global conference in The Netherlands is now available. This year we celebrate our 20th. anniversary and offer our guests a dinner. We start Friday evening (possibly Friday afternoon) and Saturday all day and evening. This year we are at another location but close to our usual location.

Program and registration

Register

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Upcoming Events

May
10

0909:0505 10-05-2018 - 0505:0505 11-05-2018

Twitter

CMTC-OVM Our CMTC information brochure is now available in 16 languages! Are you missing a specific language please let us k… https://t.co/1K5eyZlEEe
About 11 hours ago
CMTC-OVM JaarcongresECP We are present at this conference in the Hague. https://t.co/u8ggsgKciP
Thursday, 16 November 2017 15:14
CMTC-OVM During our recent global conference in the NL we launched a new initiative for young children en young adults:… https://t.co/LTQ4Sw8rlk
Wednesday, 15 November 2017 12:52