• Mission
  • Activities
  • Member meeting NL
  • Family day
  • Children's website
Mission

CMTC OVM Mission

"Our activities are aimed at the well-being of people who suffer from vascular malformations like CMTC ('Van Lohuizen syndrome') and to stimulate the scientific research of these afflictions."

CMTC Efteling 20090613 007

CMTC activities

An example of the many activities which we are performing. With special thanks to Mark Knopfler (Dire Straits) for allowing the use of his music.

Member Meeting NL

Member meeting NL 2015

Our global member meeting was held on the 14th of November 2015 in the Netherlands.
A total of 126 people from 10 countries was present.

Read more

Family day 2015 (Efteling)

On Saturday the 27th of June we organised the Dutch CMTC-OVM family day again! This year we had chosen the Efteling!
It was perfect in all aspects!

Read more

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Youth Education Rare Diseases

This is a special website for children in the age around 10-15 years. Here you can travel through a number of worlds together with Amy and Max!

 

Register as member

Our annual report and accounts of the year 2017 have been published. The annual accounts are available in Dutch only. We have chosen this year for a redesign of our annual report.

We have not only published our annual report but also our accounts. Not only is this required because of our CBF quality mark but we also want to be transparent to our members, donors and sponsors.

Annual report and accounts

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Upcoming Events

Nov
1

0808:1111 01-11-2019 - 1010:1111 02-11-2019

Twitter

About 3 hours ago
CMTC-OVM @eurordis We did nominate a very special young woman from the UK!
About 18 hours ago
CMTC-OVM We are on tour again in the USA! 28 - 29 September Atlanta 1 - 7 October Denver 8 - 16 October San Francisco 18 -… https://t.co/V15UoEuIRS
Wednesday, 17 July 2019 10:12