• Mission
  • Activities
  • Member meeting NL
  • Family day
  • Children's website

CMTC OVM Mission

"Our activities are aimed at the well-being of people who suffer from vascular malformations like CMTC ('Van Lohuizen syndrome') and to stimulate the scientific research of these afflictions."

CMTC Efteling 20090613 007

CMTC activities

An example of the many activities which we are performing. With special thanks to Mark Knopfler (Dire Straits) for allowing the use of his music.

Member Meeting NL

Member meeting NL 2015

Our global member meeting was held on the 14th of November 2015 in the Netherlands.
A total of 126 people from 10 countries was present.

Read more

Family day 2015 (Efteling)

On Saturday the 27th of June we organised the Dutch CMTC-OVM family day again! This year we had chosen the Efteling!
It was perfect in all aspects!

Read more


Youth Education Rare Diseases

This is a special website for children in the age around 10-15 years. Here you can travel through a number of worlds together with Amy and Max!


Register as member

The registration for our global Family Day in the Netherlands on Saturday the 7th of July 2018 is open! 

Only members and volunteers can participate. Members must have paid their membership fee for 2018.

After registration you will receive an invoice for a contribution of € 10 pro person above the age of 3 years. We are offering: park access, reception with drinks & snacks and an excellent lunch.

Our volunteers don't have to pay this contribution.

More information and registration


Upcoming Events


1010:1010 09-10-2019 - 1111:1010 16-10-2019


1010:1010 18-10-2019 - 1111:1010 23-10-2019


0808:1111 01-11-2019 - 1010:1111 02-11-2019


0505:1111 09-11-2019 - 0505:1111 14-11-2019


CMTC-OVM @LochmullerLab @ConnectRD @ceci_jm @CHEOhospital @IMI_PREFER Nothing about patients without patients ... According… https://t.co/HlGd2Y7EsB
Saturday, 12 October 2019 15:46
CMTC-OVM @ChanZuckerberg @bsw5020 @Iamals Diagnose of rare diseases takes on average 5-7 years and in over 40% more than twi… https://t.co/DaiktBMgh5
Friday, 11 October 2019 18:25
CMTC-OVM At this very moment over 60 people will participate from different countries in our global member conference in the… https://t.co/xUmEUCgsFi
Friday, 11 October 2019 18:20