• Mission
  • Activities
  • Member meeting NL
  • Family day
  • Children's website

CMTC OVM Mission

"Our activities are aimed at the well-being of people who suffer from vascular malformations like CMTC ('Van Lohuizen syndrome') and to stimulate the scientific research of these afflictions."

CMTC Efteling 20090613 007

CMTC activities

An example of the many activities which we are performing. With special thanks to Mark Knopfler (Dire Straits) for allowing the use of his music.

Member Meeting NL

Member meeting NL 2015

Our global member meeting was held on the 14th of November 2015 in the Netherlands.
A total of 126 people from 10 countries was present.

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Family day 2015 (Efteling)

On Saturday the 27th of June we organised the Dutch CMTC-OVM family day again! This year we had chosen the Efteling!
It was perfect in all aspects!

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Youth Education Rare Diseases

This is a special website for children in the age around 10-15 years. Here you can travel through a number of worlds together with Amy and Max!


Register as member

We are very busy developing a new website that works well on smartphones/tablets, with a lot of news and new functionality! 


Upcoming Events


0808:1111 01-11-2019 - 1010:1111 02-11-2019


CMTC-OVM On Tuesday the 20th of August we will meet families in Bratislava to give them personal support. https://t.co/ZGnzzW0Iyh
About 12 hours ago
CMTC-OVM @DSMeu @e_health_ Interesting! Apart from over 20 years in the global rare diseases world Lex Van Der Heijden has w… https://t.co/Vk0VVCG8LL
Sunday, 18 August 2019 17:04
CMTC-OVM RT @irvinederm: Does the skin have a newly discovered sensing organ? Study suggests complex network of specialised cutaneous Schwann cells…
Friday, 16 August 2019 12:05