• Mission
  • Activities
  • Member meeting NL
  • Family day
  • Children's website
Mission

CMTC OVM Mission

"Our activities are aimed at the well-being of people who suffer from vascular malformations like CMTC ('Van Lohuizen syndrome') and to stimulate the scientific research of these afflictions."

CMTC Efteling 20090613 007

CMTC activities

An example of the many activities which we are performing. With special thanks to Mark Knopfler (Dire Straits) for allowing the use of his music.

Member Meeting NL

Member meeting NL 2015

Our global member meeting was held on the 14th of November 2015 in the Netherlands.
A total of 126 people from 10 countries was present.

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Family day 2015 (Efteling)

On Saturday the 27th of June we organised the Dutch CMTC-OVM family day again! This year we had chosen the Efteling!
It was perfect in all aspects!

Read more

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Youth Education Rare Diseases

This is a special website for children in the age around 10-15 years. Here you can travel through a number of worlds together with Amy and Max!

 

Register as member

On June 27, 2013, during his his retirement farewell, Prof. Dr. Arnold Oranje, one of our medical advisors, was named an Officer of the Order of Oranje-Nassau.

He is one of the very few child dermatologists in the Netherlands and has practiced nearly 40 years. He's not really retired but continues as a consultant in the field of general dermatology and children.

Arnold is one of the first students of the Medical Faculty of Rotterdam in the Netherlands in 1966 where he began his training as a doctor. In 1974 he began his training as a dermatologist and his PhD program in 1982. He is a pioneer in the field of Pediatric Dermatology in the Netherlands and has therefore had a lot of challenges to overcome. Worldwide, his reputation is undisputed. He was involved in the early stages of many patient organizations. Arnold has also participated in the developmental stages of the Working Group on Vascular Abnormalities Rotterdam (WEVAR) because he is from the perspective of the patient and believes that a patient must deal with various doctors when a multidisciplinary approach is required.  WEVAR has been in existence for 20 years in 2013.
Thanks to him Paediatric Dermatology has been put on the map anno 2013. Arnold has organized several international conferences in his beloved Rotterdam.

               

 

One of his known views is that a child is not a small adult but ...

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Upcoming Events

Oct
18

1010:1010 18-10-2019 - 1111:1010 23-10-2019

Nov
1

0808:1111 01-11-2019 - 1010:1111 02-11-2019

Nov
9

0505:1111 09-11-2019 - 0505:1111 14-11-2019

Twitter

CMTC-OVM @raredisorders Fully agree! However, this is not only in Canada. This is at least the same average in Europe. We ne… https://t.co/HNBqFI7ro3
About 6 hours ago
CMTC-OVM We have arrived in Washington DC for the NORD conference. In case you want to have a meeting with us, please send… https://t.co/epIO1IM6Fz
About 8 hours ago
CMTC-OVM We provide personal support where we can such as last weekend near San Francisco. @RareDiseases @Eurordis… https://t.co/ASvD9HBNiK
Thursday, 17 October 2019 22:51