• Mission
  • Activities
  • Member meeting NL
  • Family day
  • Children's website
Mission

CMTC OVM Mission

"Our activities are aimed at the well-being of people who suffer from vascular malformations like CMTC ('Van Lohuizen syndrome') and to stimulate the scientific research of these afflictions."

CMTC Efteling 20090613 007

CMTC activities

An example of the many activities which we are performing. With special thanks to Mark Knopfler (Dire Straits) for allowing the use of his music.

Member Meeting NL

Member meeting NL 2015

Our global member meeting was held on the 14th of November 2015 in the Netherlands.
A total of 126 people from 10 countries was present.

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Family day 2015 (Efteling)

On Saturday the 27th of June we organised the Dutch CMTC-OVM family day again! This year we had chosen the Efteling!
It was perfect in all aspects!

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jezz

Youth Education Rare Diseases

This is a special website for children in the age around 10-15 years. Here you can travel through a number of worlds together with Amy and Max!

 

Register as member

My name is Lilian Vermeer. I've been many years working as a scientific journalist. After studying chemistry and a promotion on a biochemical-immunological topic I have a number of years worked at a publishing house. After that, I started for myself as a journalist because I write about science and related topics like.

CMTC's I had never heard until I came into contact with your association when I went looking for volunteer work. There is still unknown about this condition, the cause and the genetic background. I hope my contribution by to find out more about this and to keep up with new developments but also, for example, experience stories to draw on and a newsletter. I am married and mother of a son.

jezz

Upcoming Events

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Twitter

CMTC-OVM @jen_unwin A dog has a boss. A cat has staff ...
Friday, 21 February 2020 06:10
CMTC-OVM Are you aware how many people with skin diseases are suffering from psychological issues: 20-40%! https://t.co/sxho8icWL6
Thursday, 13 February 2020 14:10
CMTC-OVM @PGOsupport @AAHelder Maken jullie een samenvatting?
Wednesday, 12 February 2020 20:50