• Mission
  • Activities
  • Member meeting NL
  • Family day
  • Children's website
Mission

CMTC OVM Mission

"Our activities are aimed at the well-being of people who suffer from vascular malformations like CMTC ('Van Lohuizen syndrome') and to stimulate the scientific research of these afflictions."

CMTC Efteling 20090613 007

CMTC activities

An example of the many activities which we are performing. With special thanks to Mark Knopfler (Dire Straits) for allowing the use of his music.

Member Meeting NL

Member meeting NL 2015

Our global member meeting was held on the 14th of November 2015 in the Netherlands.
A total of 126 people from 10 countries was present.

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Family day 2015 (Efteling)

On Saturday the 27th of June we organised the Dutch CMTC-OVM family day again! This year we had chosen the Efteling!
It was perfect in all aspects!

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Youth Education Rare Diseases

This is a special website for children in the age around 10-15 years. Here you can travel through a number of worlds together with Amy and Max!

 

Register as member

In January 2016 we have published our new newsletter for the first time. This newsletter gives an overview of the most important activities and refers to our website for more details. The newsletter contains information not only for members but also, for example, information for the general public. Information for members refers to the closed members area within our website.
A subscription is free and sign out is easy.

Existing relations receive the newsletter automatically and don't need to register for the newsletter.

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Upcoming Events

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Twitter

CMTC-OVM Primary and secondary prevention of rare diseases presentation during ICORD conference. @RareDiseases @eurordis… https://t.co/CuUh2Rw97s
Wednesday, 13 November 2019 07:27
CMTC-OVM @MiikkaVikkula Planning to be present next year!
Wednesday, 13 November 2019 04:40
CMTC-OVM Drug prices are a global issue. New approaches are discussed during the ICORD conference (which has been moved to… https://t.co/MCaVG8qA9g
Tuesday, 12 November 2019 09:26