• Mission
  • Activities
  • Member meeting NL
  • Family day
  • Children's website

CMTC OVM Mission

"Our activities are aimed at the well-being of people who suffer from vascular malformations like CMTC ('Van Lohuizen syndrome') and to stimulate the scientific research of these afflictions."

CMTC Efteling 20090613 007

CMTC activities

An example of the many activities which we are performing. With special thanks to Mark Knopfler (Dire Straits) for allowing the use of his music.

Member Meeting NL

Member meeting NL 2015

Our global member meeting was held on the 14th of November 2015 in the Netherlands.
A total of 126 people from 10 countries was present.

Read more

Family day 2015 (Efteling)

On Saturday the 27th of June we organised the Dutch CMTC-OVM family day again! This year we had chosen the Efteling!
It was perfect in all aspects!

Read more


Youth Education Rare Diseases

This is a special website for children in the age around 10-15 years. Here you can travel through a number of worlds together with Amy and Max!


Register as member

We as the CMTC-OVM organization find privacy important!
We see it as our responsibility to protect your privacy. Our privacy policy applies to all services of our organization. You should be aware that CMTC-OVM is not responsible for the privacy practices of other websites and resources which we mention on our website.
Your (address) information will only be used internally and not giving away, sold, or rented to third parties. Your data will not be shared with others without your permission. We have taken appropriate technical and organizational security measures to keep your data safe and protect it from unauthorized use. An example is that we let users create passwords which are difficult to guess even if one uses 'robots'.
All data, including email messages, are stored on secure environments.

Despite all the measures we have taken, we cannot guarantee 100% security and by using our website, you accept this risk.

If you have any questions about our privacy policy please send an email to This email address is being protected from spambots. You need JavaScript enabled to view it.


Upcoming Events


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CMTC-OVM @PGOsupport Dank je! Ben weer in buitenland. Volgende week zal ik bellen.
Thursday, 22 August 2019 09:32
CMTC-OVM @PGOsupport Is het ook mogelijk deze cursus in gecomprimeerde vorm 1 op 1 te doen?
Thursday, 22 August 2019 08:55
CMTC-OVM Today we have met two families in Bratislava (Slovakia) for personal support. Answering lots of questions and con… https://t.co/eEVOR7ZGAu
Tuesday, 20 August 2019 21:14