• Mission
  • Activities
  • Member meeting NL
  • Family day
  • Children's website
Mission

CMTC OVM Mission

"Our activities are aimed at the well-being of people who suffer from vascular malformations like CMTC ('Van Lohuizen syndrome') and to stimulate the scientific research of these afflictions."

CMTC Efteling 20090613 007

CMTC activities

An example of the many activities which we are performing. With special thanks to Mark Knopfler (Dire Straits) for allowing the use of his music.

Member Meeting NL

Member meeting NL 2015

Our global member meeting was held on the 14th of November 2015 in the Netherlands.
A total of 126 people from 10 countries was present.

Read more

Family day 2015 (Efteling)

On Saturday the 27th of June we organised the Dutch CMTC-OVM family day again! This year we had chosen the Efteling!
It was perfect in all aspects!

Read more

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Youth Education Rare Diseases

This is a special website for children in the age around 10-15 years. Here you can travel through a number of worlds together with Amy and Max!

 

Register as member

This meeting can only be attended by members, doctors, attendees and volunteers who support our Organization.

Member meeting subscription

This meeting can only be attended by members, doctors and the volunteers who support our organisation.

Instructions

  • Please fill in all the fields to complete your application for the member meeting.
  • This is a multiple page form. You can go back and forth through the pages. Some items such as Diet/Special allow for multiple selection. Seleted items are marked blue. By using the Control ( Ctrl ) key when clicking items the selection can be toggled and the selection extended or narrowed.

Note

All information will be handled in the strictest of confidence.

Family / Group
Contactperson
Origin

In case of problems send an e-mail with description to: This email address is being protected from spambots. You need JavaScript enabled to view it.

 

Remark

All information provided is kept confidential.

This meeting can only be attended by members, doctors, attendees and volunteers who support our Organization.

[No form id or name provided!]

In case of problems send an e-mail with description to: This email address is being protected from spambots. You need JavaScript enabled to view it.

 

Note

All information provided is kept confidential.

 

This meeting can only be attended by members, doctors and the volunteers who support our organization.

[No form id or name provided!]

Note

All information will be handled in the strictest of confidence.

Thank you for the time and effort you took. We will inform the further course of the handling of your complaint as soon as possible.

Submit a complaint

Through this form you can file a complaint.

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Upcoming Events

Oct
18

1010:1010 18-10-2019 - 1111:1010 23-10-2019

Nov
1

0808:1111 01-11-2019 - 1010:1111 02-11-2019

Nov
9

0505:1111 09-11-2019 - 0505:1111 14-11-2019

Twitter

CMTC-OVM @raredisorders Fully agree! However, this is not only in Canada. This is at least the same average in Europe. We ne… https://t.co/HNBqFI7ro3
About 7 hours ago
CMTC-OVM We have arrived in Washington DC for the NORD conference. In case you want to have a meeting with us, please send… https://t.co/epIO1IM6Fz
About 8 hours ago
CMTC-OVM We provide personal support where we can such as last weekend near San Francisco. @RareDiseases @Eurordis… https://t.co/ASvD9HBNiK
Thursday, 17 October 2019 22:51