• Mission
  • Activities
  • Member meeting NL
  • Family day
  • Children's website
Mission

CMTC OVM Mission

"Our activities are aimed at the well-being of people who suffer from vascular malformations like CMTC ('Van Lohuizen syndrome') and to stimulate the scientific research of these afflictions."

CMTC Efteling 20090613 007

CMTC activities

An example of the many activities which we are performing. With special thanks to Mark Knopfler (Dire Straits) for allowing the use of his music.

Member Meeting NL

Member meeting NL 2015

Our global member meeting was held on the 14th of November 2015 in the Netherlands.
A total of 126 people from 10 countries was present.

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Family day 2015 (Efteling)

On Saturday the 27th of June we organised the Dutch CMTC-OVM family day again! This year we had chosen the Efteling!
It was perfect in all aspects!

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jezz

Youth Education Rare Diseases

This is a special website for children in the age around 10-15 years. Here you can travel through a number of worlds together with Amy and Max!

 

Register as member

jezz

Upcoming Events

No events found

Twitter

CMTC-OVM We are planning our global conference for 2020 and we have only the 17th and 24th of October available. Which date… https://t.co/jFPqAwgttP
Tuesday, 19 November 2019 18:53
CMTC-OVM @cmutena Congratulations from the Netherlands!
Sunday, 17 November 2019 20:53
CMTC-OVM Primary and secondary prevention of rare diseases presentation during ICORD conference. @RareDiseases @eurordis… https://t.co/CuUh2Rw97s
Wednesday, 13 November 2019 07:27