On Saturday, November 15, 2014 we will again organize our annual meeting in the Netherlands. For our foreign guests, we all start on Friday, November 14, at 8:00 pm with a snack and drink to become acquainted. We started in 2011 with parallel sessions with different subjects and this proved a hit. We are going to apply this concept again this year and several parallel sessions that are so popular that they are kept both during the morning as well as during the afternoon.

In addition we offer the option to get a free medical diagnosis, in a separate room so privacy is guaranteed, by several of our medical advisors. It may be advisable to make use of this option annually in order to be able to follow the patient properly.

Becky Gallis, the president of the CMTC-OVM US organization will be present as well with the ultimate goal of helping our patients and their parents. Her granddaughter Ellayna will also be present mainly because of the ongoing medical care she needs and Becky shows her as a nurse.

We will be recording certain sessions on video and publish these on our website in the area that is open to members so that all members can still watch the sessions afterwards.

feltingEspecially for our members who come from abroad, we have arranged  low cost hotel accommodation (including breakfast buffet).
Saturday evening we will organize a typical Dutch dinner for our foreign guests and volunteers.

For children, a separate room is available again with all kinds of entertainment. This year there is again the opportunity to 'felt' in which wool is used to make items with soap.  Every year this has been enjoyed by children of many ages.

Hotel Leusden (van de Valk)
Philipsstraat 18
3833 LC Leusden
Link to website Hotel

We have arranged 'last minute' prices again. A two person room including breakfast costs € 79 per night. A three person room including breakfast costs € 99 per night. These prices are excluding local tourist tax.

Attention: all sessions will be held as much as possible in both Dutch as well as English.

Preliminary agenda Saturday, November 15, 2014

Time   Speaker(s)   Subject
09:30 - 10:00 hrs   -   Reception and registration
10:00 - 10:30 hrs   Lex van der Heijden   Association business
10:30 - 11:00 hrs   Becky Gallis (CMTC-OVM US)   CMTC-OVM US
11:00 - 11:30 hrs   Lydia Handzova   CMTC-OVM and social media
11:30 - 12:30 hrs   Young adult (parallel 1)   Personal experiences (children)
11:30 - 12:30 hrs   Lex van der Heijden & Marco Dings (parallel 2)    Project Youth Education Rare Diseases & demo
11:30 - 12:30 hrs   Maartje van Hees (parallel 3)
  Remote medical care & demo
12:30 - 14:00 hrs      Lunch and networking
14:00 - 15:00 hrs   Dr. Wouter van der Schaar (parallel 4)
  Personal experiences (adults)
14:00 - 15:00 hrs   Dr. Liesbeth Siderius (paralllel 5)   Pediatrics
14:00 - 15:00 hrs   (parallel 6)   to be determined
15:00 - 15:30 hrs   Medical/psychological advisors, Becky, Lex   Questions and answers
15:30 - 17:00 hrs   -   Drink and snacks
18:00 - 20:00 hrs   -   Dinner with foreign guests, volunteers and board



Attention: only members, doctors and invited persons have access to this meeting.