• Mission
  • Activities
  • Member meeting NL
  • Family day
  • Children's website

CMTC OVM Mission

"Our activities are aimed at the well-being of people who suffer from vascular malformations like CMTC ('Van Lohuizen syndrome') and to stimulate the scientific research of these afflictions."

CMTC Efteling 20090613 007

CMTC activities

An example of the many activities which we are performing. With special thanks to Mark Knopfler (Dire Straits) for allowing the use of his music.

Member Meeting NL

Member meeting NL 2015

Our global member meeting was held on the 14th of November 2015 in the Netherlands.
A total of 126 people from 10 countries was present.

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Family day 2015 (Efteling)

On Saturday the 27th of June we organised the Dutch CMTC-OVM family day again! This year we had chosen the Efteling!
It was perfect in all aspects!

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Youth Education Rare Diseases

This is a special website for children in the age around 10-15 years. Here you can travel through a number of worlds together with Amy and Max!


Register as member


Upcoming Events


0909:0505 17-05-2019 - 0505:0505 18-05-2019


0909:0606 07-06-2019 - 0505:0606 08-06-2019


06-07-2019 0909:0707 - 1111:0707


0808:1111 01-11-2019 - 1010:1111 02-11-2019


CMTC-OVM @hugodejonge Bijzonder triest! De ouders als voorbeeld voor de kinderen ...
About 11 hours ago
CMTC-OVM The European Reference Networks (ERN's) are a very important initiative for patients with rare diseases for instanc… https://t.co/VX1AiNzfa7
About 14 hours ago
CMTC-OVM @rarecare @eurordis @BrianOConECHA @ECHAlliance Thank you for organising this webinar!
Friday, 15 March 2019 08:40