• Mission
  • Activities
  • Member meeting NL
  • Family day
  • Children's website

CMTC OVM Mission

"Our activities are aimed at the well-being of people who suffer from vascular malformations like CMTC ('Van Lohuizen syndrome') and to stimulate the scientific research of these afflictions."

CMTC Efteling 20090613 007

CMTC activities

An example of the many activities which we are performing. With special thanks to Mark Knopfler (Dire Straits) for allowing the use of his music.

Member Meeting NL

Member meeting NL 2015

Our global member meeting was held on the 14th of November 2015 in the Netherlands.
A total of 126 people from 10 countries was present.

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Family day 2015 (Efteling)

On Saturday the 27th of June we organised the Dutch CMTC-OVM family day again! This year we had chosen the Efteling!
It was perfect in all aspects!

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Youth Education Rare Diseases

This is a special website for children in the age around 10-15 years. Here you can travel through a number of worlds together with Amy and Max!


Register as member


Upcoming Events


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CMTC-OVM The registration for our global conference in the Netherlands is at full speed! Personal medical & psychological ad… https://t.co/rWIFiFI1de
Friday, 19 October 2018 14:49
CMTC-OVM NORDSummit thank you for the great conference! Just landed at Schiphol airport in the Netherlands. https://t.co/3Eyv2WWuHA
Thursday, 18 October 2018 04:38
CMTC-OVM The global Dutch CMTC-OVM organisation is ready for the NORDSummit conference in Washington DC! https://t.co/SBM0MrDJ1E
Monday, 15 October 2018 11:52